Monday, February 28, 2011

The "Red Devil" is done!!!

I am sitting here on the couch on a Monday after treatment amazed at how I am feeling.  I am sure that the fact that I am done with the "Red Devil" chemo which has been doing a number on me is a HUGE relief!!!  There seems to be less fog in my brain!  I am without any energy at the moment but that will be helped by naps today and a good night sleep tonight! 
Thanks to all those who love us I am going to get all the rest I need today...The twins are off to Grandma and Papa's for the day and night.  They will get to celebrate Uncle Brad's birthday at the restaurant tonight and then have a sleep over.  Katelynn and I will have a girls night of lounging around and watching our favorite movies or shows. 
I look forward to getting back on my feet and getting through this week.  Chemo #7 will be in two weeks and then they will be spread out to every three weeks which will give me more good days than tough ones.  It looks like I will have my last chemo treatment on May 13th and then surgery a few weeks after that.  I will make it through most of the school year which makes my heart feel so good!  I am so happy that I have been able to fight this battle, take care of my family and do what I have always loved to do- teach!!!
I am off to nap and find strength for the new day of tomorrow!

Friday, February 25, 2011

#6

6th one done and all went well!!!
The Port worked wonderfully!
We met a young couple today at chemo who were great!  We all were able to talk about our journeys and how similar they were!  We also found out that they and I are all teachers so we have so much in common!  The husband (21 yr. old)  has cancer so the wife and Keith had a great talk about being the caregivers while the husband and I spoke and zoned out throughout the time.  It was so great to find this connection.  His battle should be done in a month so they will have so much to celebrate!
The side effects are taking hold so I will be sleeping over the next three days but I hope to recover well knowing I do not have to have anymore of the "RED DEVIL" chemo in my system again.  Now we move on to another type of chemo.
Thank you for all your prayers for the port and for me!  They have all worked!

Thursday, February 24, 2011

Reflections on Night before Chemo

Thursday night has arrived and I am nearly exhausted.  This past week has not gone as I had hoped because I am still dealing with the symptoms of anemia and the exhaustion that comes with these past 10 weeks of chemo.  I did have a good day yesterday and today so I have been trying to get many things accomplished in that short time.  I did feel like I was trying to keep all those different balls I am juggling in the air.  I can say for the most part I am able to keep them in the air so I am happy about that!

The best part about the last 3 and a half months has been the fact that there are so many people who are caring for my kids!  I have two wonderful friends who have fought over who would have the girls on the Fridays of chemo.  They have been keeping score and making it such a fun time for the girls while I am battling this cancer and getting a head start on sleeping off the side effects of the chemo.  They have welcomed all of us into their families and made us all know how much they love us!  We would not be able to calmly get through the four and a half hours of chemo without them and the girls would not be as happy without these fun playdates they keep enjoying!

We have also been so blessed by those people Keith and I both work with each day!  The teachers at the Grove rallied around me and have been so generous!  I was able to find relaxation over winter break from their gift of a massage.   We were also well fed by the food certificate donations!  They have also provided us delicious meals over the past months!   I am so lucky to have such fantastic people at work who keep my spirits soaring high!  The Grove family has come alive to make life easier for this family and there will never be big enough words to say the Thank You that I want to give them!  I will hope to spread my smile all over the school for many years to come!!!
 We were also given the gift of gift cards from the whole crew at Keith's work.  It was so unexpected and very generous of them!  They are a special group of people who keep Keith going at times when it is difficult for us!  

We are so lucky to have support from people all over our lives.  From the staff at the kids schools to the friends we have known for many years to the staff at the Oncologist office to our many long time family friends, we have true supporters of this family.  The prayers and the cards and the many ways they have supported us have been priceless!   We are some of the luckiest people in the world!

The survivors in my life have been such a support to me!  They have walked me through the tough parts of the battle with such great advice and guidance.  They are available to me at any time.  I am the luckiest person to have such caring survivors surrounding me during this battle.  They are the perfect army for me!!!

It has been so awesome to recognize what wonderful friends and family we have who are supporting us in so many different ways.  I want all to know that we are so thankful for each one of you!  You may be many miles away or just down the street from us, but each one of you are in our hearts and help keep us going!  Love is the best part of this life we are given to live and I plan to enjoy life to the fullest!

Thank you to all who have helped us!  We love you!

Saturday, February 19, 2011

A Lazy Weekend to heal

It is strange for me to say but I am getting very good at laying around on these weekend days.  I am doing nothing but wishing my body to get better.  Today is another day that I am thankful for and I am spending it at my parents house with the twins and my mom as the others are off skiing in Colorado.  I am so happy that Keith is getting a well deserved break doing one of his favorite things!  He has been through so much and taken over so many household chores.  He deserves all the fun he can have this weekend!  I am so glad he and my dad and Katelynn have this love in common!  It gives them some wonderful quality time together to make fabulous memories to keep going through the tough times!
It was a good day because I not only get time to rest and relax but I also got to be surrounded by wonderful friends.  Katie (from Cleveland) and her brother Mike came over to visit since she is in for the weekend.  It was such a great time to visit and catch up on life.  It is so great to reminisce and remember all that we have done and been through!  It is so awesome to see where we all have gotten to in life! 
The twins went to High School Musical with their friend Allie and Ms. Beth.  They had a great afternoon away and came back with so much energy!!!  They loved the show and seeing all the BIG kids they know acting on stage!  Those are the Rock stars in their life right now!
I know that this dip in my health will be a small thing I have to get through in the scheme of things.  It is just hard to wait it out right now. 

Friday, February 18, 2011

Prayers for my PORT please!

Prayers for my PORT please!I went in to the oncology office feeling good to have my blood taken to test all my levels.  I knew there would be low levels but I did not expect all that happened! 
First my port refused to give blood so they flushed it over and over and over.  They tried a larger syringe to get more force but that did not work.  They laid me down in the chair, hold my arms above my head, cough, turn my head, stand up and raise my arms, stand on my tiptoes, and countless other tricks that did not work.  Then they put a drug in that they lovingly call "drano" which sits in there for 30 minutes and IT WORKED!  I am asking for prayers because the final round of E.C. is next Friday and in order to give it through my port they have to be able to pull blood out to ensure the drug stays in the veins because if it were to get out to my tissues it would destroy everything it comes into contact with which could be deadly.  Your prayers have helped so much over these past three months and I know together they will pull me through this as well!
If that is not bad... then the numbers came back and we had to wait to hear from the doctor (she was making her rounds at the hospital) to figure out what we should do.  My hemoglobin was rather low and my White Blood Count is nearly non-existent.  I am very much susceptible to catching anything I come in contact with.  My platelets numbers saved me from any treatment and I was sent home to stay in little contact with people and keep up with washing hands and eat safe food.  I now understand what anemia is because I have all the symptoms but I thought they were all due to the chemo.  We have looked up all the right foods to eat to increase hemoglobin so I will be keeping to those.
I pray all of you are well and have a wonderful weekend with these lovely high temps we are blessed with!

Wednesday, February 16, 2011

Inspiration in many places...

I am surrounded by so many wonderful people who inspire me to keep fighting- even when it would be easy to give up!  Today was a great day for me at school because I was filled with so many positive messages from those I work with and given a boost from my students!  I cannot tell you how important it is to me to be surrounded by strong survivors who cheer me on each day as well as those who have wonderful news about others in their lives who are battling the same fight and winning!  It has been a very hard weekend but the return to work was great for me!
I even found inspiration from a Dove Chocolate wrapper which said, "Trust your heart!"  I saw this when I unwrapped this little chocolate treat and immediately realized this was a phrase I was really in need of reading at the time.  Trusting my heart has been one thing I have been struggling with.  I do not recognize how strong I am and how strong I have been to make it to this time.  A dear friend also reminded me today that it is OK to let out the 5% of me that is not all sunshine and positive all the time.  I just need to let it out and then come back to the positive to stay healthy and fight even harder.
I am working on enjoying the next week.  The next treatment is the final one for the first set of 6.  The next chemo set is supposed to be a little easier to deal with and easier side-effects to deal with typically.  A change is definitely needed since it is harder and harder to get ready to go each treatment Friday.  I will also  have three weeks in between each of the final four treatments which I hope will make life a little easier.

Tuesday, February 15, 2011

Crazy Roller Coaster ride

WOW!  It has been a rocky few days on this journey!  I was reminded of my favorite movie when I was a child, Polyanna.  I have been able to stay positive for the most part up until this treatment and then I think I gave up!  It took alot to bring me to such a low place but it only took a night of watching TV with my whole family on our reclining couch last night.  As I looked at all that I love on the couch I realized that there is no way I wanted to ever get so low again!  These beautiful girls and loving husband are why I fight this the hardest!  I also fight hard because I want to be back to living life again!
The struggle I am having right now is dealing with how much I energy and ability to be a part of life during these treatment weekends.  I am feeling like I am missing out on so much and I am finding myself to be a burden which is about the hardest thing I have to face!  I am the "doer" and not the one to sit on the sidelines.  I do have to find some peace in knowing that this is the one time I must take it easy in order to come out of this stronger! 
I have found a quote from a dear friend that will help me get through this time, "Change your thoughts and you can change your world."  I want to find that smile again and I know I am on the way back to that happy place!  I am encouraged by the amount of energy I am getting back even this morning and will look forward to celebrating all that I am able to do these next 10 days until I face the next round of chemo. 

Monday, February 14, 2011

Happy Valentine's Day to all!

Things are looking up for me!  I am feeling better and have worked through a tough time with FEARS- another four letter word!  I struggled physically with this treatment as well as emotionally.  I am finding peace again but it is so hard to not know if this horrible cancer is going away yet.  I am such a visual person I want to see this dissolve.  After much prayer and many conversations with Keith I have found some peace and much faith that all is going as it should. 
It will be a day in which I try to regain some energy by laying low and taking many naps!  Hope everyone has a wonderful Valentine's Day!

Saturday, February 12, 2011

THE GOOD AND THE BAD

Half way done!!!!!  #5 is done and I am able to say it is OK.  I am dizzy and slightly nauseous but not near as bad as the first 3 treatments.  I did have wonderful occurrences at the doctor yesterday:  my nurse technician who takes vitals and all necessary meds I take down each time started chatting with us and we found out that there is not only a connection that she is a twin herself but her first car that she still has was almost the same car that I first had (aqua color Grand Am '93).  She also has shared some about her faith which matches my own so we have taken the time to share this as well.  She will be a helpful reason that I will walk into that office even on the days I really do not want to-- like yesterday.  I was ready to go hop on a plane and run away before treatment.  It was really hard to go because I had energy walking in and I knew I would leave in bad shape.  The doctors and nurses are a great comfort and strength I draw from when I am at the lowest and I am thankful for who they are and all the care they give to me!  It is so spiritual in this office because there is a great deal of faith running through the patients, family members and medical staff.

I do have so much to be thankful for but there have been roadblocks lately which have escalated today!  I try soooo hard to keep the negativity far away but these last three days have been so hard and it all has come to a breaking point so I am hoping if I complain I might feel better so forgive me!
How can I be at work and have so many wonderful friends and colleagues cheer me on and students and parents support me as if we were a huge family but then the reminders of the fact that I have few sick days left come crashing at me?  The same day I am sent so many hospital/ doctor bills that I do not know when we will pay them all off or how much more will come at us while I will start to bring home less and less money.  After much prayer and many tears my mom read the signs of my stress and reminded me that she and dad were here for us for anything they could do!  This was the answer to that prayer of reassurance because I know over time Keith and I will make all of this up but the here and now is scary to me!  I have no energy already and yet I have this burden taking a great deal of this precious energy that is left!
Keith and I struggled this week over a car that was dropped in our driveway.  This disease has stressed us out but then when others come in and make life harder it makes the fight even harder to win!  I just cannot believe we have people in our lives who cannot think of how their actions affect us to the core.... WHILE we also have friends in our lives who do absolutely everything to make our life easier through the meals that are made with love for us and the friends that take our kids when we are at treatment and who love them as if they were their own (or even better!!!). 
The good is there and it should out weigh the bad but at times it is hard!  I am constantly working to leave the negative behind and keep the good in front of me!  It is hard when it comes in the form of a scrap of metal that takes up room we do nothave on our driveway or a pile of papers with numbers that are astonishing or a problem that tears the Lynn-Keith team apart even slightly!!!
I ask for your help to just pray for the good to out weigh the bad as the days of recovery wear on for me as I will be here sitting/ sleeping/ recovering to have that precious energy I so want to come back.
Thank you to all who are our good in life!  You are priceless and absolutely precious to us!  Please know we are thankful for you!

Thursday, February 10, 2011

Another night before chemo...

Oh!!  This house is soooo excited tonight because we found LaLaLoopsy dolls that the twins have been wanting since before Christmas.  They have been admiring them and changing their clothes and playing together so nicely.  I hope that the whole night will be this much fun! 
Tomorrow is the halfway point for me!  I will have completed 5 out of the 10 treatments!!!  It will be a good time to celebrate how far I have come and how great all the support has been to get me here!  I can name all the medical staff that have been with me since the first day I went into the Women's Center at Lake Forest Hospital for the diagnostic mammogram.  We have been blessed by so many friends and family who have given us food over these past months.  I have all the cards I have been sent in two binders which I look at often.  The e-mails and the phone calls and chatting in person have all been some of the best medicine for me!  This may be my journey but I have so many people holding my hand and walking along with me. 
I hope everyone has a great weekend!  Stay warm!

Wednesday, February 9, 2011

Floating on air

If there is a way to feel normal these days I would have to say that today was a day I felt the most normal!  I am realizing how long those steroids would stay with me after the treatment.  I am so thankful I was able to make this change so that I can have these wonderful days!
Today I walked through the halls of school feeling so good!  I was so happy and feeling so good!  I was also reminded how great my students and their parents are when one of the moms from my math class brought me an iced tea during the day.  There are so many thoughtful people in my life and I am in awe of all the love each person shows me on a daily basis!  We are so blessed by those who have sent us food!  I am kept safe by all the prayers that are said for me!  I know I could not have gotten this far with out them all!  I love all the cards of encouragement!  They are in a special binder that I look at often so that I can stay in a positive mind!
For keeping my faith strong during the quiet times I have been reading a wonderful book that takes Psalms 23 and really helps the reader to understand all that it means.  It is a powerful Psalm that I have loved all my life but had not thought about its deepest meaning.  I have found peace during tough days as I read it!
This Fridays treatment will be the halfway point for me!  I have 10 treatments which will take me to the middle of May and this one will be the 5th one!  I am looking forward to getting through with this treatment so I can be closer to the end!  I am learning to stop pushing my body too far and will be taking 5 days to recover instead of trying to rush back to school on the Tuesday after treatment.  I will stay home this extra day to allow my whole body to get stronger.  This is huge for me because I would normally not think of myself first.
I guess you can still learn new things even at my age.  :)

Sunday, February 6, 2011

Blizzard of 2011 hibernation

I seem to have hibernated through the blizzard of 2011!  It was a gift to me to have two full days of nothing to have to do!  I spent Wed. of last week sleeping and watching everyone play out in the snow.  I was so run down from chemo but I had not realized it until I had these days of rest!
Since the blizzard I have learned to find time only for me each day.  I have had to readjust my schedule for each day but it has been working out great!
Over the past days there have been so many memorable events and meetings with people.  It was a great doctor visit on Friday!  The port worked well for getting blood again!  The nurse who took me to my room has become a part of our family!  She is a twin and we connected with her from the very first time we were in the office!  She and I had a great conversation which I laughed and enjoyed the topic.  Then my meeting with the doctor went well!  I am so blessed to have such a kind and caring doctor!  She and I spent a great deal of time talking about different things chemo is doing to my body and how I can decrease some of the discomfort.  We problem solved through many of the issues.  She also helps to encourage me to keep going even these last two treatments to come of the E.C. are going to be the toughest I have faced since my energy level is being drained.  Please think of me this month because these two treatments will be over the next 3 weeks.  It will take all of your prayers for me to stay strong and not give up when I am at my lowest!
Yesterday was memorable for Keith and I because it was the first time I left the house and forgot to check what was on my head... earlier in the day I had been annoyed by my wig so I had taken it off and replaced it with my night cap so I could relax.  Then dinner time came and we went out into town.  As we drove out of the driveway and down the cul-du-sac, I all of the sudden realized what I was wearing on my head and yelled "STOP!"  I looked at Keith and said, "How could you let me leave the house with this on my head?!?!?!?"  He is so observant at times but this was not one of them!  So he drove me back home and I ran in to change head-ware.  It only took a few minutes to ward off total embarrassment if I had made it to the restaurant.
Hair is a thing that has been comedic lately.  Have you ever thought about the importance of hair on your body?  I have found out the hard way that hair on your head is not only beautiful but it also keeps the soap from running straight into your eyes in the shower.  I have burned my eyes more since I shaved my head than ever.  I have also found that nose hairs will be appreciated when they return because I now find that my nose leaks constantly!  Those hairs are important!
Life is good and each day is a gift!  I am learning to live in such a different way but it is for just a small amount of time when looking into the future.