The Roller coaster got very bumpy today!
It all started after I got out of the shower this morning. I was trying to get dressed and ready for the doctor's appointment when all of a sudden I began to feel stabbing pain coming from the right drain where it enters my body. On the pain scale it was a 10+ and I could not even explain where the pain was coming from I just started to scream!! Keith tried to gently help figure out what was going on but any movement was horrible. He finally was able to put on Neosporin with pain reliever and loosen up a possible clot in the tubing... either one may have been the problem because I did get some relief. He called the surgeon's office and left a message for his assistant to let us know what we needed to do. At this point we were late to drop the kids off at mom and dad's which meant we were going to be late for our appointment so we left for all of these activities. We made great time and were able to make it to the office only a couple minutes behind schedule.
Once in the room I became very nervous. Lauren took all my vitals so I had the comfort of a friendly conversation and she even made sure I had the kleenex box near me. Then Dr. Chung came in and started to explain everything... she told us about the pathology findings and about the Tumor talk that my cells were looked at yesterday. She explained the numbers that they look at in order to decide about the Her2Neu positive or negative. We talked about how the numbers from my biopsy leaned much more towards the negative ratio but that the different tissue samples from the tumor were close to the positive ratio but still not in the absolute ratio. The whole panel of specialists were in agreement that I should have the Herceptin for the full year to ensure that we rid my chances of allowing those cells to invade any other part of my body. I sum it up as I want to have NO REGRETS so we are going to do anything we have to so we can keep me around for a long time. I am also going to have radiation for 5 or 6 weeks. For this I will go every week day to be radiated for about 10 minutes each day. I will meet with the Head Oncology Radiologist next week to set this up and then I will get started as soon as these "lovely" drains come out of my body.
This appointment was so full of information I thought my head was spinning when we ended. I had to have blood drawn which was not fun because my veins are terrible.... I cannot believe I am saying this... I MISS MY PORT!!! It does look like I will have to go back and have a new port put in. I was so disappointed in myself that I had the other removed but then the nurses reminded me that the week before surgery my port was inflamed and they probably would not have wanted to use it again since there was obviously something wrong with it. I would have had to replace it anyway. That is on my list for next week to call and get into Dr. Ganshirt.
I am getting through this day because I have such wonderful friends and family who have sent supportive messages and prayers my way. BUT I could not have done it without Keith. I have been so blessed with my true soul mate who is the best caregiver! He asked great questions to help put my mind at ease and he held me up when I wanted to crumble. I love him so much and cannot imagine life without him! God truly blessed me and Keith keeps reminding me that I am not allowed to leave him alone with our three darlings. :)
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